About

Je me souviens du 30 juin 2009. Je venais de terminer ma première année d’études supérieures. Enfin, ma deuxième première année. Je venais de fêter mon premier anniversaire avec l’homme de ma vie, qui passait ce jour-là son code de la route avec brio. Le lendemain, je commençais mon premier stage en maison de disques à Paris. L’été s’annonçait beau, il faisait déjà très chaud à Marseille. Mes grands-parents fêtaient leurs 57 ans de mariage en ce 30 juin 2009.

I remember June 30th of 2009. I just finished my freshman year in college. For the second time around. I just celebrated our first anniversary with my significant other, who passed his driver license written tests that very same day. The next day, I was going to start an internship in a music label in Paris. Summer was looking good, it was already very hot in Marseille. My grand-parents celebrated their 57th wedding anniversary on that 30th of June 2009.

Cette journée sembla toutefois peu appropriée pour des festivités. Ce 30 juin 2009, à l’issue d’une coloscopie décisive, j’ai appris que je souffrais de la maladie de Crohn. LA MALADIE DE CROHN. Seule dans mon box, j’étais sonnée. Le couperet était tombé. Près de six mois d’investigations et d’un état de santé lamentable ont soudainement fait sens. Je n’avais pas peur. La maladie de Crohn, je la connaissais bien : moins d’une année auparavant, ma petite sœur en avait été diagnostiquée. J’étais en colère, dans l’incompréhension : comment avait-on pu me laisser souffrir ainsi alors même que la corrélation entre la génétique pure et dure et les symptômes apparaissait évidente ?

Although that day did not call for festivities. This June 30th 2009, after a conclusive colonoscopy, I discovered I suffered from Crohn’s disease. CROHN’S DISEASE. Alone in my hospital room, I was stunned. The final word came. Nearly six months of medical tests and a lousy health suddenly made sense. I was not afraid. I knew Crohn’s disease well: less than a year before, my little sister was diagnosed. I was angry, baffled: how could I’ve been left suffering for so long when the correlation between pure genetics and my symptoms were so blatant?

Depuis, la route a été longue, entre traitements inadéquats et une quasi-guérison, prise et perte de poids incessantes, intolérance au gluten et ultrasensibilité intestinale… Aujourd’hui j’ai 24 ans, je suis traitée par Rémicade, je vais très bien et je veux le clamer haut et fort. Pour ceux qui affrontent cette maladie seul(e), qui veulent partager leur ressenti, leur propre histoire, leur combat contre le handicap. Voici mon témoignage, mes “crohniques”.

Since then, the journey was long, going from ineffective treatments to an almost complete recovery, from fat to skinny, gluten intolerance and hypersensitive bowels… Today I am 24 years old, treated with Remicade, alive and well, but most of all: in need to spread the word! For those of you who struggle with this disease alone, who wants to share, their feelings, their stories, their fight. Here is my testimony, my “crohnicles”.

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5 Comments Join the Conversation

  1. By Mary Gwennap, November 15, 2009 at 4:10 pmMy son suffered for 10 years with Crohn’s dssiaee. Everyone should try using a natural product, bee Propolis. He has now been 10 years without an medication. Bee propolis is a anti inflamitory among other things. If this did not stop it, then it was one of God’s miricles.

    Reply

    • Thanks for the piece of advice. I guess an healthy lifestyle is also mandatory when you’re on the way to remission. And as the soundtrack of “The Prince of Egypt” says: “There can be miracles when you believe” :)

      Reply

    • Sorry to hear about your diagnosis. I was dinagosed 18 years ago when I was 23. Although very painful you can live a healthy and normal life. Your best bet is to visit ccfa on line. That is the Crohn’s and Colitis Foundation of America. Their website will tell you all you need to know. I was operated on in 2003. I have been in remission and have three beautiful daughters. Good luck to you.

      Reply

      • Hey there, thanks for those kind words… It’s very helpful to know that other crohnies get better and are even able to give birth and raise children. I’m not planning to do so in the coming years, but still, I am wondering a lot about it, since I’m afraid I’ll pass the disease along my future children. Hope everyone’s ok. Take care! xxx

    • above we eat steamed vegegis (carrots, broccoli, cauliflower) and baked or grilled boneless, skinless chicken breasts for most of our dinners. I have a very limited diet because of my Crohn’s disease and my meals have to be on the small side because big meals (even those with foods I can eat) can cause pain and other problems. I know Coke if full of sugar. That’s one reason why I mentioned that I might drop my one coke a day habit in order to lose the 5 lb that I need to lose in the next month. There’s no need for it to have as much fructose in it as it does! It’s terrible. I’m glad that I don’t drink more of the stuff! My ex-sister in law used to drink a big 2 L bottle a day! Interesting video BTW. I’d drink diet soft drinks if 1. I didn’t absolutely hate the taste of them and 2. if they didn’t use artificial sweeteners like Aspartame and other chemical based sweeteners. I think those are worse than the high fructose in normal soft drinks worse for me with my delicate system anyway.Thanks for your comment!

      Reply

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